The Women’s & Children’s Hospital Foundation (WCH Foundation) is proud to enhance support for South Australian families experiencing the death of a child thanks to a new program.

Caring for and supporting families in grief following the death of a child has always been a focus of the Women’s and Children’s Health Network (WCHN) Paediatric Palliative Care Service (PPCS). For some families though, death may be sudden and unexpected. For all families, the loss of a child will have a profound and long-lasting impact and being alongside them through this time can help to navigate towards better healing.

Families often benefit from support through their grief, to honour, remember and incorporate their child into their lives in new ways.

The WCHN and the WCH Foundation are working in partnership to offer all families experiencing the death of a child equitable bereavement care with the deepest compassion, respect and expertise to navigate the difficult journey of grief after the death of a child.

Grief and Loss program

The new Alongside Grief and Loss Program works alongside families. The program focuses on partnering with families through their unique grief journey recognising that grief has no set pattern or order and the depth, duration and experience is different for everyone.

Among the support structures for families grieving the death of a child are professional counselling, linkages to community supports, sibling and family group programs, access to memory-making opportunities such as fingerprint impression jewellery, and funeral assistance.

WCH Foundation Head of Mission, Verity Gobbett, says, “This was an important project for the WCH Foundation because we have seen the impact that strong, well-coordinated bereavement support can have for a family’s ability to cope. Equity is an important principle for us, and we knew if we could help to build a more inclusive and equitable service, we wanted to be a part of it.”

WCHN Psychosocial Clinical Lead and Grief and Loss Coordinator, Dimi Patrinos, says the death of a child impacts on the family system at emotional, psychological, spiritual and practical levels.

She says, “Families draw on their strengths and support networks, but the unique responses of families require a specialised, professional bereavement service. We are so very proud to be able to support more families through the new Grief and Loss program.”

The Roberts Family

In 2005, Marty and Michelle Roberts’ son, Sam, died just before his fifth birthday, having battled the impacts of the very rare neurological degenerative condition called Niemann-Pick Disease Type C.

Sam’s care in the Women’s and Children’s Hospital prompted the Roberts family to fundraise for the WCH Foundation, supporting projects just like this one, through their Cycle4Sam initiative, which has raised almost $1 million to date.

Marty says bereavement care for families is critical and they are pleased their fundraising efforts can assist with the new program.

“We appreciate and understand the depth of grief and loss that losing a child can bring, and it’s so important that other families who experience such pain have access to grief and loss support,’’ Marty said.

“We were most grateful for the support of the WCH Paediatric Palliative Care Service after we lost Sam. We hope that this support can now be provided across the hospital. We are looking forward to watching the progress of this new program at the WCH,’’ added Michelle.

 

Learn more about support available in times of grief 

 

Banner image: The Alongside Grief and Loss Program Team (L-R) Admin Maddie Evans, Social Worker Yongjian Liang, Psychosocial Clinical Lead and Grief and Loss Coordinator Dimi Patrinos, Social Worker Renee Symons, Art Therapist Lauren Morgan, Parent Mentor Coordinator Estelle Chapple and Art Therapist Carolyn Groocock.

 

The Women’s & Children’s Hospital Foundation (WCH Foundation) is supporting the Chimera Legacy Foundation to land its donation of a Virtual Reality Pod into the Metropolitan Youth Centre (MYH) in Elizabeth to help youth tackling trauma.

We have helped bring a different outlook to the lives of Adelaide youth tackling trauma, with some Virtual Reality therapy, helping them to escape the stresses of life.

MYH is a trauma-responsive youth health service working within the Health and Recovery, Trauma Safety Services (HaRTSS) of the Women’s and Children’s Health Network in Metropolitan Adelaide.

Chimera Legacy Foundation works to embed Virtual Reality therapy into hospitals and treatment centres for healthcare needs and, with the support of the WCH Foundation, is breaking some new ground to help youth at MYH by donating a Virtual Reality pod.

Damien Thompson, a Leukaemia, Bone Marrow Transplant, Graft V Host Disease and Double Lung Transplant recipient, founded Chimera Legacy Foundation to be able to use his own experience of finding support in VR therapy to set out on a journey to provide VR therapy into the care sector.

Damien said his own experience with VR therapy when in hospital for long periods of time makes him certain the youth at the MYH now have an important tool to tackle the trauma they deal with.

“Coping with these stresses is difficult and usually met with medication. It wasn’t until I tried VR that I was able to manage the stress,’’ Damien said.

“Having a window to the world at your fingertips allowed me to escape anytime I felt stressed. It’s that mental reset we all need.’’

Chimera’s VR Pods already support young patients on their healthcare journey. Chimera works directly with healthcare providers to tailor and deliver VR therapies to assist patients during their treatments and this latest donation extends that technology into the field of trauma support for youth.

Virtual Reality Pod

MYH Social Worker, Sarina Cornforth, WCH Foundation Corporate & Community Fundraising Manager, Ansley Easterlin, and Chimera Legacy Foundation Founder, Damien Thompson.

Verity Gobbett, Head of Mission for WCH Foundation, said, “The WCH Foundation is delighted to be able to work with the Chimera Legacy Foundation to facilitate this innovative use of new technology to enhance the patient experience.”

“Knowing that Damien has had the lived experience of Virtual Reality helping him in his younger life overcome great challenges brings an even bigger sense of the value of this donation to those who will use it.”

“It is really exciting that the WCH Foundation is able to help Chimera Legacy Foundation bring their goals to fruition.”

Sharon Wight, Senior Manager for MYH, said, “MYH provides health care to vulnerable young people who have often experienced early life trauma. Coming into appointments can often feel scary and overwhelming, especially where they may be engaging in therapeutic care that can be unsettling.”

“The VR pods will be a part of a special trauma-responsive therapy/wellbeing space that will contribute to making their time at MYH welcoming, safe and engaging.”

In partnership with the Occupational Therapy Department, through the Infant Development Team (IDT) at the Women’s and Children’s Hospital, we’ve created Play Bundles to assist in supporting families with their baby’s development.

We have helped the Infant Development Team (IDT) at the Women’s and Children’s Hospital create toy bundles for the approximately 200 referrals they receive each year.

In the past, the team have provided families with handmade resources like picture cards and sensory toys, however these only had a short lifespan.

Occupational Therapist, Ashleigh Olsen, says, “It can be quite challenging providing recommendations to parents knowing the families will have to go source these resources themselves, and also knowing that the most vulnerable families may not have the capacity to do this.”

Now, the Women’s & Children’s Hospital Foundation has provided the team with funding to source specific therapy resources to make an infant therapy play bundle to give to families after a consult with the IDT.

Patient, Aaron, and his twin brother, Moses, using the toys from the bundle with Occupational Therapist, Ashleigh Olsen, and mum, Maurine.

Patient, Aaron, and his twin brother, Moses, using the toys from the bundle with Occupational Therapist, Ashleigh Olsen, and mum, Maurine.

These resources benefit both the patient and families, and support the patient’s gross motor, fine motor, vision, sensory, social and language development.

 Ashleigh says, “We know these Infant Therapy bundles are appreciated and valued by our patients and families.”

Aaron with one of the play bundles.

Aaron with one of the play bundles.

The IDT provide a holistic, family-centered developmental service to both inpatients and outpatients at the Hospital. The team consists of an Occupational Therapist, Physiotherapist and Speech Pathologist who see the most complex and developmentally vulnerable babies; some who have had very lengthy hospital admissions.

Patients of the IDT are provided with a personalised developmental therapy program and the recommendations from this often include specific play activities to support their motor skills, vision, language, play and social development.

Thanks to Kids2 and Tomy for contributing items for the bundles, with support from Big W.

The Women’s & Children’s Hospital Foundation has purchased ultrasound machines to support patient care at the Women’s and Children’s Hospital.

Ultrasound is a method of taking pictures of people using sound instead of x-rays and shows the size, shape and position of things inside the body by using high-frequency sound waves.

Paediatric Emergency

This incredible ultrasound machine is the first of its kind for the Paediatric Emergency Department at the Women’s and Children’s Hospital.
 
With greater image quality and improved sensitivity, this machine enables point-of-care scanning for swift decision-making and faster diagnosis. The introduction of the machine has resulted in reduced wait times, particularly after hours when the radiography department is closed.
 
Lino Piotto, Specialist Paediatric Sonographer, says “This is a safer option for imaging because it doesn’t expose a child to radiation. We use this for many types of cases, but it is especially useful for babies or children experiencing abdominal pain.”
 
The $130,000 machine has been made possible due to the generosity of a supporter who left a gift in their Will to the WCH Foundation.
Lino Piotto, Specialist Paediatric Sonographer, and Kristin Noah, Philips Ultrasound Applications Specialist, with the new ultrasound machine.

Lino Piotto, Specialist Paediatric Sonographer, and Kristin Noah, Philips Ultrasound Applications Specialist, with the new machine.

IV Ultrasound

Hundreds of patients like Leo (pictured) visit the Medical Day Unit each year. Many require intravenous medications on a regular basis.

Some patients can be difficult to cannulate, which can cause distress and pain due to repeated attempts.

Now, with a new IV ultrasound machine funded by the WCH Foundation, MDU patients have greater access to ultrasound-guided IV insertion. This improves first-attempt success rates, reducing patient distress and leading to enhanced care.

The new IV ultrasound being used on patient, Leo, in the Medical Day Unit.

The new IV ultrasound machine being used on patient, Leo, in the Medical Day Unit.

16-year-old Blake has Sturge Weber Syndrome and attends regular appointments at the Women’s and Children’s Hospital.

The Women’s and Children’s Health Network Ophthalmology Team often use a tonometer to check for high pressure in her eyes to manage Glaucoma, and we recently funded the purchase of this equipment to help with eye checks for patients like Blake.

Optometrist, Claire Ong, using a tonometer on Blake.

Optometrist, Claire Ong, using a tonometer on Blake.

A tonometer is an important little tool used to measure eye pressure in a range of instances.

Lachlan Knight, Acting Orthoptic Clinical Coordinator, says, “We use tonometers for many reasons on children of all ages, particularly for the care of patients with chronic conditions who may be at risk of eye problems such as juvenile idiopathic arthritis. We can also use them for patients who have been admitted due to eye injury or suspected injury. ”

This equipment can also help to diagnose glaucoma in children, which is especially useful for babies who cannot describe what they are seeing or feeling.

Lachlan says, “Most importantly, this portable piece of equipment means we can get an instant ‘on the spot’ measurement without the need for anaesthesia.”

“We are so thankful to have the support of the WCH Foundation to allow us to utilise the newest and best technology for our patients.”

A big thank you to SA Power Networks Employee Foundation for contributing to this project.

Budding young artist, Zoë, is a patient under the care of the Michael Rice Centre for Haematology and Oncology and has a “huge passion for art”.

10-year-old Zoë says, “I like art because it is very inspiring and I love it in a way that I can’t explain. I think that I have been inspired by art my whole life.”

Through our Arts in Health Program, we provided creative support to Zoë to develop her own solo exhibition in the Women’s and Children’s Hospital – Eternal Flames and Soaring Spirits.

This support has ensured that Zoë is seen as more than her Leukaemia diagnosis and allows her creativity and art talents to shine.

Zoë explains, “Sadly, last year I got sick with Leukaemia and had to stay away from school and be in hospital.”

“I met artist Mali Isabel just after she had done an art workshop at the Hospital and we spoke to Lauren from the Arts in Health Program to see if I could do an exhibition and she said yes!”

Once Zoë’s exhibition was installed, her mum, Charlotte, didn’t tell her it was up yet and surprised her by taking her past. When Zoë realised it was her art on the walls of the Hospital, she was so excited! She says she just couldn’t stop smiling.

Zoë also planned a special surprise herself for her little sister, Bronte, allowing a spot in her exhibition for one of Bronte’s pieces. Bronte couldn’t believe she got to be included and was so thrilled to see her art on display amongst her big sister’s work.

‘Polar the ice dragon’ and ‘Arie the fire dragon’.

The inspiration behind this particular exhibition comes from Zoë’s love and fascination for dragons.

She says, “Dragons have been a passion of mine for two years. The way I got into them was because I read an amazing story about them called Wings of Fire.”

“I think dragons have been helping me through my sickness because when I think about dragons, I feel stronger. I think that dragons are not monsters but just misunderstood mythical creatures.”

“My ice dragon, Polar, gives me inspiration. Polar is a very young little dragon, and she has very powerful magic. I think that says that even though you’re young, you’re powerful.”

Zoë thanks her mum, dad, friends and dragons for supporting her through her sickness and being kind.

For anyone currently looking for some strength, Zoë has some wonderful words of wisdom:

“We all have the power of the Wings of Fire!”

Zoë and her mum, Charlotte, with her exhibition.

Zoë and her mum, Charlotte, with her exhibition.

Learn more about our Arts in Health galleries

Gifts in Wills have have made a major contribution to funding our Arts in Health program this past year. Learn more about how you can support the heath and care of future generations.

Outcomes for children with brain cancer have changed very little in the last 30 years. Brain cancer leads to more deaths in children than any other disease, and survival is often coupled with lifelong disability.

Our 2023 WCH Foundation Bloom Research Program grant round called for projects to bring new hope to kids with brain cancer – and Professors Jordan Hansford and Simon Barry answered that call with two projects hoping to understand the predictors of survivorship and explore new treatments.

Noralyn Manucat-Tan, Professor Jordan Hansford and Amanda Luck in the SAHMRI labs.

Dr Noralyn Manucat-Tan, Professor Jordan Hansford and Amanda Luck in the SAHMRI labs.

Professor Hansford and his team have been biobanking brain tumour samples in the labs of SAHMRI, preserving them for years to come and making them accessible to researchers globally.

Our community’s support has allowed the team to start advanced genomic and epigenomic investigation into the predictors of late effects in long-term survivors of paediatric brain cancer. They are using the latest molecular and sequencing technologies to learn all that they can from the biobanked samples and share the knowledge worldwide.

While in the labs of the Women’s and Children’s Hospital, Professor Simon Barry and his team are focusing their attention on immunotherapy, so that children with this devastating disease may both survive, and thrive. This revolutionary treatment is already standard for some children and young people with leukaemia.

Our community’s generous support, along with gifts left in Wills, has brought together key experts in CAR-T and childhood brain cancer to establish the SA Centre for Paediatric Cancer Immunotherapy, which it is hoped will eventually pave the way for clinical delivery of immunotherapy here in SA.

Learn more about our Bloom Research Program

After moving to Adelaide from Sydney in 2015, Dilraj and his family quickly became familiar with the Women’s and Children’s Hospital.

16-year-old Dilraj has Duchenne Muscular Dystrophy, a severe type of muscular dystrophy, and is cared for by the Hospital.

His family found out about our Laklinyeri Beach House through a disability group they are a part of, and were keen to visit after hearing that it was a fully accessible holiday home – something that is a rarity for them.

Dilraj’s mum, Manpreet, explains, “Most places are not accessible for holidays, and if you do go for an accessible house, it’s very expensive. We can’t afford it. So we were very lucky to get into the Beach House.”

The Beach House in Victor Harbor is purpose-built and medically equipped for families of children in palliative care, or with complex medical needs.

Dilraj and his grandparents at the Beach House.

Dilraj and his grandparents at the Beach House.

The size and layout of the house allowed the family to invite others to join them, including Dilraj’s grandparents, and a friend who also has Duchenne Muscular Dystrophy.

Despite visiting in summer, the group caught some bad weather but took the opportunity to make the most of the house, playing games and watching movies. The teenagers especially loved the excuse to video game.

In between the rain, they got out to experience Urimbirra Wildlife Park with the memory-making vouchers provided by HAS Foundation, and took a trip to the jetty.

The highlight of the trip though was just being able to get away to a place they knew Dilraj could fully enjoy.

Manpreet says, “Dilraj liked the room because it’s very big – he doesn’t have this much space at home!”

“Most of all he liked the bathroom because everything is accessible.”

Dilraj with his dad, mum and sister in the Beach House cubby house.

Dilraj with his dad, mum and sister in the Beach House cubby house.

Learn more about our Laklinyeri Beach House

 

The start of 2024 has seen a rush of corporate support for the WCH Foundation.

A number of our corporate partners have run campaigns that have allowed the community to show their support for women, children and families cared for by the Women’s and Children’s Health Network.

Check out the work of these amazing organisations!

BIG W

BIG W held an Easter token campaign that raised $23,000 to support a dedicated breastfeeding space in the Women’s and Children’s Hospital.

Customers could purchase a bunny token to be added to the wall of their local store.

The company also donated chocolate bunnies to help patients celebrate Easter in the Hospital.

Coles and Hospitals United for Sick Kids

Customers could purchase a $2 donation card at the checkout of Coles stores to help sick kids get back home to the things they miss.

Money raised in South Australia and the Northern Territory will go towards our Cocoon Program – a dedicated clinic for babies under 12 months old who are in, or at risk of entering, foster care.

Costco

Costco held three VIP non-member shopping nights again this year.

For a donation upon entry, anyone who was not already a Costco member could experience a shopping spree at the Adelaide store.

Existing members could also donate by purchasing a token at the checkout.

ANZ

corporate wrap-up

We were thrilled to be this year’s charity host for the ANZ Community Ball.

The night was great fun and raised over $200,000 for a host of local charities, including the WCH Foundation, Guide Dogs SA, Lifeline SA, Childhood Cancer Association of SA and Cure4CF.

Bunnings

corporate wrap-up

Bunnings held a statewide community sausage sizzle as part of their Easter Family Night that raised over $6,000. The company then made an additional donation, which brought the total to $7,500 which will support children and families in our community.

Trading Metals

Corporate wrap-up

For another year, Trading Metals has generously donated a portion of proceeds from their scrap metal business, providing around $25,000 again over the past year.

Learn more about our corporate partnerships

 

Allowing families to make precious memories together is one of the most special things about our Laklinyeri Beach House, and Grace’s family did just that.

Grace was born 24 weeks premature, and suffered a brain injury. As a result, she has quadriplegic cerebral palsy and epilepsy and is legally blind and non-verbal.

Now 12 years old, Grace has many touch points across the Women’s and Children’s Hospital, including rehabilitation, neurology, gastroenterology, dermatology, gynaecology and ophthalmology.

Her family were very keen to stay at our Laklinyeri Beach House – a purpose-built holiday home in Victor Harbor for families of children in palliative care or with complex medical needs.

Before their trip, her mum, Kimberley, said:

“Given Grace’s complex medical needs, we know that tomorrow is never promised with her.”

“We would be so appreciative to go away and continue to make memories with her together as a family and with those closest to her.”

Grace and her mum Kimberly feeding the animals at Urimbirra Wildlife Park.

Grace and her mum Kimberley feeding the animals at Urimbirra Wildlife Park.

In the lead-up to the trip, the family were so looking forward to visiting Urimbirra Wildlife Park, and had a wonderful time when the day came.

As Beach House Program Partners, HAS Foundation contributes to extra special memory-making activities for families to experience during their holiday at the Beach House. This can include visits to the Urimbirra Wildlife Park, a family photography session, a ride on the cockle train or a massage for the parents/caregivers.

Grace’s mum, Kimberley, said, “There are no words to express the immense gratitude we feel for this special time away in this incredible home.”

“From the moment we arrived, I was very overcome with emotion at the incredible generosity of food on the table and vouchers to attractions.”⁠

“One I will particularly treasure is the photography. Capturing memories of our two children and family here – how can we ever thank you⁠?”⁠

Grace’s family enjoying their day out at Urimbirra Wildlife Park.

Grace’s family enjoying their day out at Urimbirra Wildlife Park.

Learn more about our Laklinyeri Beach House

 

Sign up for our latest news

"*" indicates required fields

This field is hidden when viewing the form
This field is hidden when viewing the form
This field is for validation purposes and should be left unchanged.