The simple joy of a getaway by the sea may seem ordinary for some. But for families with children who live everyday with illness and uncertainty, the chance to experience a beach holiday is extraordinary.
At just 13 weeks old Allira was diagnosed with a very rare genetic disorder, so rare that she is one of only 700 people in the world with this condition. Allira’s mum Remiko was told there was no cure and Allira would require ongoing care for the rest of her life.
Please take a moment to watch Allira and Remiko’s story.