When time is limited, every moment matters.

Every year, hundreds of South Australian parents are given the devastating news that they have limited time left with their children. Bobby and Kiera Lovett have been given this news not once, but twice.

In 2018, after multiple tests, scans, and specialist appointments their youngest son, Declan, who was three at the time was diagnosed with leukodystrophy, an incurable neurological disorder that affects the central nervous system.

Just months after Declan’s heartbreaking diagnosis, genetic testing revealed Connor has the same leukodystrophy as his younger brother, while younger sister Evie-Lee was cleared. Both boys are now under the care of the Women’s and Children’s Hospital Palliative Care Service.

“Someone asked me recently how I stay so strong, but the truth is I don’t have strength. I cry everyday. Connor and Declan deserve so much in life; they don’t deserve to go through this”, says Kiera.

Please take a moment to watch the Lovett’s story.

Young patient Connor smiling with parents at the Beach House.
Young patient Declan in a wheelchair receiving treatment from his Nurse.
Young patient Declan in am embrace with his mum on a couch at the WCH Foundation Beach House.
Young patient Declan in his wheelchair smiling at the camera being led by younger brother, Connor.