From relying on the aid of his two older sisters to walk, to taking his first unassisted steps, Dimi has made leaps and bounds with his progress in the past year.
Dimi’s Mum, Anne, recalled the moment she saw her son take his first unassisted steps, “I saw him out of the corner of my eye and asked, ‘Did you just walk?’ He just looked at me — he was very sneaky about it at first.”
Reaching this milestone moment has been a long journey for Dimi and his family, which at times was incredibly difficult and scary. There were moments Dimi’s family and doctors were unsure if he would ever come home.
Dimi was born in August 2012, seven weeks premature. An operation at just three days old revealed he had a serious bowel condition and chronic lung disease. He spent the first 20 months of his life in the WCH, where he relied on drips, tubes and breathing apparatus to help keep him alive; equipment that could only be accessed from within the Hospital.
Dimi and his family’s wishes were answered on Good Friday 2014. After spending almost two years in Hospital, Dimi was discharged; a milestone only possible thanks to a portable breathing machine loaned from the Hospital.
Dimi’s mum, Anne said Dimi coming home at Easter is a time she will never forget.
“It made a huge difference to our lives because we were finally home as a family, together, instead of spending birthdays and Christmas’ in hospital. It was scary at first – there was a fair bit of equipment we needed but it meant no more running around and our family was finally together.”
Dimi’s ongoing support from the Hospital
Dimi no longer requires the oxygen equipment during the day, however, he still uses an oximeter (to measure the oxygen levels in his blood) and requires oxygen at night. Dimi visits the Hospital every three months, while Anne goes once a month to collect his oxygen and feeding supplies.