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Marc, Anna and their 18-month-old son Sebby are one family who know just how important the WCH Foundation Beach House is.
In a very short amount of time, young Sebby has become dependent on technology – suction units and feed pumps are now a part of his daily routine. Anna says “The Beach House is so relevant to us. There’s so much planning we have to do just to get away – our ‘normal’ is something very different for now.”
Paediatric Palliative Care is not something any of us want to think about, but for some families, it is their reality.
Our vision is that the WCH Foundation Beach House will provide an environment in which the whole family can rest, recharge, and create special memories together, providing them with the break they need to continue their journey, however long it may be.
With construction nearing completion we now need to furnish the Beach House and to make it a welcoming and safe place to stay.
“I grew up by the sea and like so many other South Australian kids, some of my favourite memories are at the beach and near the ocean.
Before we received Seb’s diagnosis of Tay-Sachs disease, we pictured raising our darling son in the sunshine, playing at the beach with his cousins and ‘normal’ family activities filled with carefree fun and happiness.
Now we take nothing for granted.” – Sebby’s mum, Anna.