“These next few months with Sebby are critical. Physically and cognitively he’s deteriorating at a quick rate.” – Sebby’s dad, Marc.

Marc, Anna and their 18-month-old son Sebby are one family who know just how important the WCH Foundation Beach House is.

In a very short amount of time, young Sebby has become dependent on technology – suction units and feed pumps are now a part of his daily routine.  Anna says “The Beach House is so relevant to us. There’s so much planning we have to do just to get away – our ‘normal’ is something very different for now.”